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Encouraging CRMO Research and Understanding
CRMO Families United for Better Research
There is no way to explain how it feels to be a parent of a child who screams every day in pain because their bones are inflamed and breaking, and there is nothing you can do. As families of children and adults battling CRMO (Chronic Recurrent Multifocal Osteomyelitis), we realized early on that we need research on our side to help our loved ones battling this incredibly rare and horribly painful disease.

We have partnered with Seattle Children’s Hospital and the international CRMO Physicians group to collect data and push research forward. Seattle Children's Hospital is a regional center for children with CRMO. Headed by Dr. Dan Zhao, the hospital has started a clinic that actively cares for over 150 children with the disease. Clinical and translational research on CRMO is vitally needed to understand the mechanics of the disease in children and identify more effective treatments. Seattle Children's is currently the coordination site for several clinical studies which aim to collect data, blood and tissue samples which we hope will shed light on the disease and lead to better treatments.

We appreciate your generous donation to support this work. We currently need funds to support a full-time clinical research assistant who can help coordinate the clinical studies and assist in sample collection. Please help us raise much needed funds for this important work and push towards an eventual cure. Your donation gives HOPE to those who are suffering!


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